7.29.2012
7.26.2012
Meeting Dr. Lee
Today Colin had his first appointment in the Skeletal Dysplasia clinic at Texas Children's Hospital. We met Geneticist, Dr. Brendan Lee, who will provide care for him and monitor his OI. It was a good visit where we received some good information and had most of our questions answered. Dr. Lee told us Colin's genetic mutation is unique (not previously recorded) so he cannot say for sure exactly what type of OI he has, but he appears to be somewhere between Type 1 and Type 4 (the two milder types) and that he would like to start Pamidronate infusions. He also told us there is no reason for him to think Colin would not be ambulatory - it would just be a matter of time. Praise God!
Fish in waiting area
7.25.2012
Colin: 20 Months
Some notes about Colin at 20 Months:
- finishing words now with ending consonants (cup, top, baff (bath))
- adds "s" to words like rocks, cars
- says "more please", "milk please"
- says "luf ouu"
- loves to pretend to shoot people with his index fingers, does this to people when he firsts meets them
- obsessed with golf balls and coins, likes rocks too.
- will hold onto a small object for hours without losing it
- covers his eyes with his hands and says "Colin!" (trying to get us to say Where's Colin?)
- knows some number sequences - 8, 9, 10, 11, 12
- loves cantaloupe, grapes, watermelon, dried blueberries and cherries
- tells people about his cast
- says "doctor fun"
- he loves wearing hats and if he spots one somewhere in the house he insists on wearing it all day.
- finishing words now with ending consonants (cup, top, baff (bath))
- adds "s" to words like rocks, cars
- says "more please", "milk please"
- says "luf ouu"
- loves to pretend to shoot people with his index fingers, does this to people when he firsts meets them
- obsessed with golf balls and coins, likes rocks too.
- will hold onto a small object for hours without losing it
- covers his eyes with his hands and says "Colin!" (trying to get us to say Where's Colin?)
- knows some number sequences - 8, 9, 10, 11, 12
- loves cantaloupe, grapes, watermelon, dried blueberries and cherries
- tells people about his cast
- says "doctor fun"
- he loves wearing hats and if he spots one somewhere in the house he insists on wearing it all day.
7.23.2012
7.22.2012
The Woodlands
We had a fun-filled weekend in The Woodlands visiting with Kyle's side of the family. We stayed at Kimberly & Mark's house, along with Kolby and his family. Gigi and Pop were there but stayed in a nearby hotel. It was fun to have all the cousins together!
While I was getting things ready to load in the car, Colin asked to sit in the booster and eat a yogurt. "Why, YES! Of course!" We don't pass up an opportunity to get Colin some food.
The Dads took the big kids fishing in a neighborhood pond Saturday morning.
Gigi and I took Colin for a walk and let him swing at the park.
Aunt Kimberly put together a scavenger hunt for the older kids to do while the younger kids napped.
Dinner at MiCocina
The kids rode the carousel and a couple of rides inside the mall after dinner.
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